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Kappa Phi Gamma Sisters Raise Hundreds for Sanfilippo Syndrome Research

IMG_5774Written by Jenny Mathew HS'17

Last semester, we, the sisters of Kappa Phi Gamma, hosted two events to raise money for Sanfilippo Syndrome. Sanfilipo Syndrome is a very rare genetic disease and because it is so rare there isn’t much known about it. It is a metabolism disorder in which the body cannot properly break down long chains of sugar molecules. These chains of molecules are called glycosaminoglycans (formerly called mucopolysaccharides). The syndrome belongs to a group of diseases called mucopolysaccharidoses (MPS). 

We chose to host this event because our Greek Advisor, Kathy Nay, has a daughter who was diagnosed with Sanfilippo Syndrome. This foundation helps raise awareness and raises money for research.  After everything Kathy Nay has done for our sisterhood, this was the least we could do for her and her family. We held a game night, which was set-up like minute-to-win-it. Teams played several rounds, all of which had different types of games/tasks that needed to be done. It seemed everyone that participated had a good time, and it was nice to see that we were able to enjoy ourselves while raising money for a great cause. We also held a fundraiser at Copabanana. With both the fundraiser and the event, we raised a total of $602 for the Team Sanfilippo Foundation.

We would like to thank our community for helping us raise awareness for a great cause that is very important to us and Kathy Nay and we hope that we can all continue to help spread awareness and ultimately help find a treatment or cure!


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